Webinar: Frameworks for Research Infrastructures in Europe
The Human Brain Project (HBP) aims to build a collaborative ICT-based scientific research infrastructure. In this webinar we will open the discussion on which Research Infrastructure (RI) framework is suitable for the HBP.
Seminar: Data governance and informed consent
Data on patients, stored in hospitals around the world, provide a valuable resource for research. In this seminar, leading neurologists, personal data managers, experts in bioethics and patient representatives come together to discuss the challenges setting up and participating in ‘big data’ research as suggested by the HBP.
December 11, 2017 11:00 am
Workshop: Using big data to understand the human brain and its diseases
The Medical Informatics Platform (MIP) being developed as a part of the Human Brain Project, is currently one of the most promising ICT platforms to share clinical brain data. In order to inform neuroscientists and clinicians in Denmark about the MIP and open a discussion on how Danish hospitals can benefit from the wealth of data, a workshop on how to join the MIP will be held in Copenhagen.
October 3, 2017 11:00 am
Webinar: Self-tracking in the Human Brain Project
Self-tracking devises are potential key players in the development of personalized and participatory health care and may help to provide health care information beneficial for research and clinical decision making. During an online debate stakeholders and experts discussed the potential of using data tracked by patients and research participants themselves in clinical brain neuroscience
April 20, 2017 4:00 pm
Webinar: Informed consent
Informed consent is a formal agreement that a patient sign to give permission for a medical procedure (such as surgery). In an online debate guest speakers explained the complexity, solutions and trends in relation to informed consent and provided their recommendations for best practise.
February 6, 2017 10:00 am
Workshop: SP12, EAB and Ethics Rapporteurs joint workshop on dual use
During a half day workshop HBP Ethic Rapporteurs, Ethic and Society (SP12) and the HBP Ethic Advisory Board met to reflect on issues related to potential military and defense applications of HBP research (dual use). The goal was to provide concrete concerns and recommendations to the HBP Opinion on dual use.
November 11, 2016 9:00 am
Citizen meeting: Privacy and data protection
Six citizen meetings were organized in order to provide the public with an opportunity to reflect on issues related to privacy and data protection in research projects, and to provide their ideas and opinions to the researchers and managers of the HBP. The meetings took place in Austria, Bulgaria, Poland, Portugal, the Netherlands and Sweden.
February 1, 2016 12:00 am
Webinar: Development of disease signatures and personalized medicine
The Human Brain Project (HBP) uses anonymised data from hospitals throughout Europe to discover new disease signatures for brain diseases. In an online debate experts from a variety of fields, presented their views on the social and ethical challenges associated with disease signatures and personalized medicine.
May 1, 2014 10:00 am
Webinar: Dual use and neuroscience
During an online debate HBP researchers and experts on dual use ethics, policy and applications discussed dual use issues arising from technological development and discoveries in the Human Brain Project.
January 7, 2015 10:00 am
Seminar: Opening up the Human Brain Project to the neuroscience community
Researchers from the Human Brain Project (HBP) met with scientists from the neuroscience community to initiate an on-going dialogue on the data and theory for advancing the future neuroscience and the HBP.
May 21, 2017 10:00 am